Thursday, April 30, 2009

Too Much Information

One of my favorite pictures with my brother Joe and Dan. Just cause I hate posting without a picture: (see how skinny I used to be?!)

I know, I'm fully of TMI. Actually I'm full of a lot of stuff :P Yesterday I had another appointment with my gastroenterologist and got a couple of answers. Finally something makes sense!
First of all I have Splenic-Flexure Syndrome. It's similar to, and sometimes considered part of, IBS. The bowel below the bend (flexor) near the spleen (splenic) empties out okay, but above that it gets bored and stops moving along.
The other issue I have is Generalized Dysmotility Disorder. Or maybe it's Global? Oh whatever. Basically the muscles that move food through my digestive system don't always get along.
A few years ago I had tests done on my esophagus because everything was getting stuck when I swallowed. After dilating the esophagus I still had trouble. They did an esophageal manometry study (not fun) and discovered a motility disorder. It's not really anything that can be "fixed", just dealt with. So I chew carefully, swallow in small amounts, and drink plenty of water with food and pills.
I have also suffered for quite a while with severe constipation and have now had several tests done and several treatments attempted which didn't do much. Last week I had a Stiz Marker Study done -- took a pill with a bunch of little rings in it then had an xray taken every couple of days until they were all gone. Everything cleared out perfectly. Except that it usually isn't that well behaved >scratch head<
The conclusion, which suddenly has light-bulbs popping on above my head ever since, is that I have generalized dysmotility disorder. My esophagus isn't the only one that doesn't move things along properly. Food doesn't always empty at the right time from my stomach, and then it sometimes gets "lost" on its way through the rest of the digestive process. The doc said that if he did a lower digest manometry where they insert a balloon and watch its progress, the results would most likely show the bubble go along fine, then go backwards, then forward again, then wander off.... kinda like the way my writing / speaking is, LOL.
There is no permanent solution to either of these issues, but the symptoms can be treated. Since the foreign matter of the rings had such a stimulating effect on the muscles, it is assumed that good old fashioned fiber in mega-doses should do the trick. I brought home a box (big box -- takes two hands to carry it!) of fiber supplement samples to try out before I bother buying anything. We should know within a few days at the most whether this will work. So far it seems promising.
Previously the docs have tried several "move-it-along" drugs / supplements, but not the classic cause if I had something wrong in my gut (actually a proper medically used term for intestines and stuff!) that could make things worse. And besides, the newer stuff is less offensive, lol. The stuff I'm on now is a tablespoon or so of straight psyllium that you shake up with water then chug down. Tastes like drinking an open cup of water that's been sitting next to an active table-saw, lol.
Anyway, so there's the story -- I think this is promising. It makes a lot of sense to me, so I think we're on the right track.
I have another appt coming up with the urologist. We're gonna see if there's anythign they can do to get rid of these kidney stones once and for all. I'm on yet another course of cipro which makes me really sick and miserable for at least the 7 day course. I assume the culture they did last week came back positive, cause they never called to say I should stop taking it. One body system at a time, though ;)

Monday, April 27, 2009

My Mom is...

Kate has been playing with some friends this afternoon. She just came home in tears. She is horribly upset, poor thing. She is upset because her friend said that her mom is better than me. Well, I may fret about that sort of thing, but poor Kate was really angry that anyone could think their mom is better! It's so touching... in a distressing sort of way...

Monday, April 20, 2009

Still Alive

Yeah, it's been a little longer than I would like, but I'll just stick my nose in for a second to let you all know I'm still alive :)
I have lots of pictures, but I'm wiped out. You'll have to wait for another day :P
Lizzie got her spring pictures from school today (Finally! they were taken just before Valentine's day!) and they're super cute. It came with a CD, so I can post the pictures as much as I want :)
Photobucket
I'm currently having a "Sitz Marker Study" done on my gut. The gastro is actually doing testing to find out what is really wrong. Good luck with that :P lol So I took a pill n Friday with something like 22 tiny little rings in it. Then I had an xray today and I'll have another one Wednesday, and again on Friday if the rings are still visible on Wed. If the rings are still visible on Friday, then I probably need to have surgery. If not, then I probably need long term psycho-therapy. The issues on the table here are Hirschsprung's Disease or an overactive Adrenal gland. Hirschsprung's is diagnosed in infancy 90% of the time, but can lurk into adult-hood. It is basically a section of the bowel that doesn't have the necessary nerves to function properly. The other possiblity is that my adrenal gland got pumping at some point and has just not properly calmed back down -- think "fight or flight mechanism". Basically in that case my body is always ramped up to run away or kick some boo-tay and in so doing, diverts blood from "non-essentials" such as digestion. Assuming no physiological problems with the adrenal gland, it is something where a good therapist needs to help figure out what the trigger was and get it dealt with. I think surgery would be easier, LOL.
My kidneys are getting increasingly painful. One lortab no longer makes things better. It is taking two lortab in order to lie still at night to go to sleep. Hopefully this means that the stones are wiggling around and will pass, but I'm not counting on it. I had to call my urologist today to ask for more meds. After things are settled with the gastro, if I'm still having so much kidney pain I'll probably go see him again to make sure it's not infection and not just stones. I did just finish a round of antibiotics for infection, but that doesn't always mean the infection is gone for me :P
Anyway, that's ilfe in a nutshell. I'm not feeling so good right now, so I'm gonna go put the girls in bed and get in a hot tub as usual. I'll add pictures in a day or so of happy stuff :)

Sunday, April 12, 2009

Sometimes Words Cannot Express...


I have been so excited recently that Sabrina's hair is finally thickening up and growing out. I mean, she's 3 and still has baby-fine hair at the ends! Well, so much for that. A few words that freeze the brain: "Mommy, Nina is cutting her hair!". Oh dear. Sure enough. It's not good. In order to even out her hair she'd have to get a haircut like Daddy -- buzzed probably with the smallest attachment possible. Not very girly :( So for this week I'm going to be head-banding her and requiring that they actually stay on her head. Hopefully that will do the trick... It looks like she had her head shaved for a brain biopsy or something! Grrrrrrrrrrrrrr. She cut across the front of her hair and right up her natural part line right next to the head going halfway back. There is no possible way to cover it up!
 

 

 
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Easter Pictures Slideshow

Thursday, April 9, 2009

For Josh A.

A friend shared this with me and I had to post it for my nephew Josh. Okay, for the older nephew Josh, lol. There are two of them... come to think of it, it may apply to both :P

J's favorite lightbulb joke:

How many kids with ADD does it take to screw in a lightbulb?


.... wanna ride bikes?

Pure Evil

5 MINUTE CHOCOLATE MUG CAKE

4 tablespoons flour
4 tablespoons sugar
2 tablespoons cocoa
1 egg
3 tablespoons milk
3 tablespoons oil
3 tablespoons chocolate chips (optional)
A small splash of vanilla extract
1 large coffee mug (MicroSafe)

spray mug with non stick spray like Pam

Add dry ingredients to mug, and mix well. Add the egg and mix thoroughly.
Pour in the milk and oil and mix well..
Add the chocolate chips (if using) and vanilla extract, and mix again.
Put your mug in the microwave and cook for 3 minutes at 1000 watts.
The cake will rise over the top of the mug, but don't be alarmed!
Allow to cool a little, and tip out onto a plate if desired.
EAT ! (this can serve 2 if you want to feel slightly more virtuous).